Friday, July 31, 2015

The fight of my life


I've been researching this topic, salt in a wound it usually accompanies talk of postpartum with a baby.  So very little, I mean little, as in nothing, is really written about it sans baby. 


I've tried telling people I'm not myself, I don't feel well...
They don't get it, most think I'm laying around crying about my baby who has died.  
I have some moments of that of course, I'm human.  
My reality is much of what is listed, dissatisfaction with everyone/everything.  
Quick to temper.
Honestly I feel like I'm going crazy.  
The isolation does not help, but then who really wants to be with a crazy person? 
I don't like feeling this way. I don't. 

Some days I wish I could just commit myself, find a magic pill so this will end. 
Oh my gosh, you do not know the relief I feel in that last sentence.
To be free from this!

I had a terrible bout of this the other night.
More than once, this thought has crossed my mind. 

(I am not suicidal, I am just not well) 

I'm too good at hiding it, I suppose.
At this point in time, people aren't as sympathetic as they once were.
Patience wears thin, people have moved on.

I've moved on in a sense.  I understand the plan. 

Currently I'm held a prisoner by the hormones.  

"Being depressed isn't a choice...it is a biological, neuro-chemical imperative; a downhill slide in an uphill battle, pushing one hand against the mountain that feels like it's crumbling down around you while you try to reach all the leaking holes in the breaking dam with the other hand".  
Kina diez deleon via human in recovery. 

True.

No one can understand unless they've been through it.
I've gone through this really only once before, never with such vengeance. 

Imagine postpartum, imagine how difficult it can be.

Then imagine it without a baby.

Thursday, July 30, 2015

Smokey

I saw this video on Facebook yesterday...obviously I wanted our baby girl to come home because saying goodbye is awful, but we didn't have Smokey when we had our other babies.  We love Smokey so much, I couldn't wait to see his reaction to a baby in the house.  

Can't help but feel a little sad about a seemingly silly thing, 
just one more way you feel robbed I guess.  
I think people would be surprised at how many things that might make you feel this way.  

Its definitely a fight to rise above it  all the time, most days are good, 
with small bad moments in time.  

I know she is safe, whole and free from the pains of this world.  

Tuesday, July 28, 2015

The New York Times

I recently saw an article on the NY Times about a woman who had a still born baby.  At the end of the article, the author asked the readers to share their stories and any advice for those about to go through this unthinkable pain.

I responded quickly (we had 1000 things going on) and assumed I would have time to edit my remarks before anything was published.

Much to my surprise I received this email today:

Hello,

My name is Michael Roston and I'm an editor on the Health/Science desk at The New York Times.

We thank you for using your time and no doubt quite a bit of emotional energy to share your insights on stillbirth with Times readers. We have published an expanded collection that includes your submissions on NYTimes.com. It can be read at this link:

http://www.nytimes.com/interactive/2015/health/stillbirth-reader-stories.html

Thank you for your patience as we worked to complete and publish this collection. We greatly admire your willingness to share your experiences, and we hope others will find comfort and guidance in what you had to say.

-Michael Roston 
michael.roston@nytimes.com

I'm grateful to tell my story (even if it's not perfectly edited)  and I pray that others will benefit from reading it and have peace along their journey.  

Tuesday, July 14, 2015

8 months

It's been 8 months since we've had Lainey.  8 months since I've held her close and kissed her cheeks.  At this time 8 months ago I had to give her to the funeral home representative.  I can't think of a more difficult time in my life, giving her up.

Life goes on, don't cry as much.  Not as interested in collecting keepsakes as I was at first.  I hold our Lainey Bear.  The bear is Lainey's exact weight.  Can't help but hold it close every couple of days for a moment or too.  It's amazing how comforting that weighted bear is to my family.

Knowing the outcome, knowing Lainey would leave us, I still would not have changed anything.  So grateful for our precious girl.  Grateful to know she is ours.  Missing her.


Sunday, July 12, 2015

Really, I'm ok

Am I?  I think so.  I have my moments.

After yesterday's post I am certain everyone who knows me and read my post most likely worried themselves about how they maybe had offended me.  The thing of it is, I love my friends and family, so I don't allow myself to become offended all that easily.  And I've had practice dealing with infant loss.

It really is impossible for someone who hasn't been through it to understand.  I've become tolerant of things people say in ignorance.  Those words don't hurt like they did the first time.  But for my new friends who've been through this, my heart hurts for them.  I know what they are living through and it's not fun.

That's why I am such an advocate of self care.

I have to get through this, I have to go on in this life, so I have to do whatever necessary to keep going.  I trust God's plan for my family and children.  I know it will be okay, and I am faithful.  But I am smart, I see no reason to put myself through torture.

Baby invitations right now go right in the trash.  I don't even feel bad about not attending or sending a gift.  Doesn't mean I don't love the family, the baby...it means I've got to protect myself.

(however this is softening)

I wasn't a big fan of showers before delivery anyway, I had one and then our baby died.

At church, when newborn babies are blessed, I used to be the person who would scribble down all the words I could, type it up and give it the families.  Always a well received gesture.  Not now, not today and that's okay.

If I'm having a bad moment in time and someone is demanding my time or attention, I simply say, "I am having a moment" then I take the time I need.

No one else is going to protect me quite like me.

If I want to talk about Lainey, I talk about her.  I'm certain at times it makes people uncomfortable, but she's my daughter, every bit as my other girls and if I want to say her name or talk about her I will.

That's the thing, just because she isn't living here on earth, doesn't make her any less of my daughter to me.

It's okay to decline family invitations, to avoid babies at church, to stay away from the baby isle at the store.  It's okay to cry, it's okay to talk about your child, your delivery, your loss.  It's okay to be emotional around anniversary dates, Mother's Day, the due date.  The 14th of every month because that's when your baby was born.  It's okay to not attend baby showers, it's okay not to fuss over new babies, it's ok really.

If you practice self care, really taking care of yourself, being true to who you are and where you are in your grief, you will be okay, Really.

Saturday, July 11, 2015

A few words about grief for people who have never buried their baby...


the loss of a baby is not just the loss of a baby.

it is the loss of a child.  

it is the loss of first smile, first tooth, first day of school, birthdays, family pictures, graduation, marriage, and grandchildren.  

it is the loss of your future with them.

it is hopes and dreams dashed.

it is the devastation of all your friends and family.  

it is watching your parents, your siblings, your children, your friends suffer.

and knowing their pain is brought on by you.  (not on purpose of course)

it is awkward silence. 

it is life changing.

if you come out of it, you are never the same person.

without people realizing it you are silently judged for not being that same person.  

initially you fight to get out of bed.

then a week and a month go by.

slowly you realize you don't cry everyday anymore.

you begin to think "I'm doing better".  

without warning tears flow.

sometimes you avoid babies.

then you are judged for avoiding babies.

you avoid baby showers.

you are judged for avoiding baby showers.  

people get angry with you for avoiding those things which are normally expected.

people want you to "get over it".

people tell you things like "it's for the best".

people will tell you, "it's not the babies fault".

friends and family get tired of hearing about it.

after a time people are surprised you are still talking about your baby.

they get tired of your depression.

they want you to snap out of it.

days that you do snap out of it, you are so proud.

unexpectedly you are enjoying a great moment when something triggers your loss.

you cry.

people around you feel bad.

you feel bad, but can't help it. 

you strategically avoid situations that might make others uncomfortable.

like not attend their baby shower weeks after your loss.

you consider their occasion as happy, and you don't want people to be reminded of your loss.  

it's not that you aren't happy for them and their baby.

it's that you are so incredibly sad to say goodbye to yours.

not to mention, YOU ARE HORMONAL.

how long did it take you to get back to yourself after delivery of a living baby?  

just imagine how much longer it takes to get back to yourself after burying a baby.

especially when the milk comes in with no baby to nurse. 

and when there won't be another baby.

or there is little hope of having another.

grief takes time.

grief needs understanding.

there is no time frame by which the grief should end.

none.

if you are getting up, showering, going to work then you are working through your grief.

you should be applauded.

some days are better than others.

at first you have bad days.

eventually you have only bad moments in your days.

sometimes you even have an entire day that was good.  

if you have several in a row, you sometimes feel guilt.

you love your baby and don't want to ever forget him and her.  

sometimes you can't love on other babies.

if you do, people think you are trying to replace your baby with that one.

if you do, people are watching to see how you react.

if you find yourself in a moment of happiness with someone else's baby you feel guilt.

again, you wouldn't want your baby to be forgotten.  

if you don't love on other babies, you are judged.  


If after reading all this you still think, mothers who have buried their babies should "get over it".

consider this.

which one of your children are you willing to live without?

really, which one?

which one are you willing to never talk about again?

to not watch grow up?

marry?

have a family?

would you mind being judged because you avoid children their age? 

how about avoiding family gatherings that might be painful?

have your "inability to move on" talked about behind your back?

or to be excluded because you can't celebrate like you used too?

think you could "get over it" if it happened to you?

After losing a child you are forever changed.  

You are not the same.

You shouldn't be expected to remain the same.  

Would you be?